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Getting the word out about the MS Challenge Walk.

 

Help create awareness about MS Challenge Walk!

Written by on May 2, 2013 at 3:20 pm

Mother Nature is finally smiling down on us and giving us great weather for walking! Can you believe that in a few months you will be walking 50 miles to create awareness about multiple sclerosis? The awareness that the Challenge Walk builds helps raise funds that fuel local programs and services as well as fund critical research aimed at stopping MS, restoring function lost to MS, and to ending MS forever.

WE NEED YOUR HELP!

Help us get the word out about the Cape Cod Challenge Walk coming up on September 7–8. Reach out to your local newspapers, television (community stations) and radio stations and ask them to tell your story. By sharing why you walk, why you have a team and why this is so important… you could inspire someone to join your team while others may want to make a donation to your team.

We are available to assist you with information about the National MS Society Greater New England Chapter, multiple sclerosis, Challenge Walk and more.

Thank you for all you do to support our vision of a world free of MS. MS kills connections… but it is through our connections with each other that we WILL kill MS.

Thank you for your help!

Aileen is the Development Manager for the Greater New England Chapter of the National MS Society responsible for the 2013 Challenge Walk. She has interned with the National MS Society at the Greater Delaware Valley Chapter with Program Events and is looking forward to working closely with the Steering Committee and Challenge Walk Teams to make this year's MS Challenge Walk a memorable one!

Getting the word out on public access TV

Written by on February 20, 2013 at 10:25 am

MS Challenge Walk is a dynamic community that draws people from around the world — yet it is a community that, like multiple sclerosis, is largely unseen. As we go about our day-to-day lives, our friends, family, and neighbors can't see what it is that drives us to walk 50 miles. Many people may not know what MS is, or that there is an event dedicated to seeing it end.

Volunteer Dan Young, who each year donates his photography skills to MS Challenge Walk, recently took an extra step to increasing awareness of MS by recruiting his employer to the cause: Access Nashua, a public access television station in Nashua, New Hampshire. Host Denise-Marie McIntosh invited four participants of MS Challenge Walk — Kevin Lombardi, James Derick, Marisa Bonanno, and me — onto her talk segment, Fairy Tale Access. We discussed how MS works, how it has affected our lives, what we do about it, and how viewers can help.

The show is scheduled to air during MS Awareness Week, March 11–17, on television stations around New England as well as YouTube. Watch for it next month on this blog, and in the meantime, enjoy this behind-the-scenes sneak preview!

Ken, a Framingham resident, joined the MS Challenge Walk in 2005, more than a decade after his mother was diagnosed. After walking for three years and 150 miles, he switched to the support crew and now rides his bicycle along the trail, providing whatever encouragement (and snacks!) he can to the 600 walkers. He is also on the event's steering committee and is this site's webmaster.

MS Challenge Walk 2013 commercial & PSA

Written by on January 20, 2013 at 7:27 pm

Every September, Brenda Neary and her Red Dirt Productions crew come to Cape Cod not just to bear witness to MS Challenge Walk, but to share the experience with a wider audience. They do so by recording the event on film and editing an amazing three-day adventure into a three-minute commercial that captures the essence of what it means to be a part of the MS Challenge Walk community.

The 2013 video is now out, having been filmed at the 2012 walk. Not only will you see many familiar friends and faces, but you can use this video to recruit even more heroes into our ranks. Use the "Share this" buttons at the bottom of this post to take advantage of this recruitment resource. Make them the stars of next year's commercial!

And here's a separate, shorter video that features different heroes:

Ken, a Framingham resident, joined the MS Challenge Walk in 2005, more than a decade after his mother was diagnosed. After walking for three years and 150 miles, he switched to the support crew and now rides his bicycle along the trail, providing whatever encouragement (and snacks!) he can to the 600 walkers. He is also on the event's steering committee and is this site's webmaster.

IDGers go the distance in fight against MS

Written by on July 24, 2012 at 3:02 pm

MS Challenge Walker Leslie Baldi and bicycle support crewperson Ken Gagne are co-workers at IDG. The company's internal publication, IDG World Update, recently featured the two's efforts to find a cure for multiple sclerosis. This story by editor David Bromley from the July 23, 2012 issue (Volume 42, Number 27, Page 5) was distributed to the organization's 9,000 employees and is republished here with permission. Click here for the original PDF.

Two Framingham, Mass.-based IDG employees are walking the walk — literally. Computerworld Senior Associate Online Editor Ken Gagne and IDG Corporate Services Group Senior Accountant Leslie Baldi have raised money for and walked the annual Massachusetts Multiple Sclerosis Challenge Walk a collective 18 times.

Baldi's husband Tom was diagnosed with MS in August 2003, just days before his 40th birthday. "I felt so powerless to help my husband until I learned about the MS Challenge Walk," Baldi said. "I have always been a fast walker so I finally felt like there was something I could do to help." She has participated in the three-day, 50-mile Walk on Cape Cod every year since — on Team Baldi's MS Busters, which is largely made up of siblings and friends of the Baldis — raising more than $125,000. "I personally feel like I am walking for the people who can no longer walk and to help raise awareness about the disease," Baldi said. "The walk is a very emotional event for us, but it renews our spirits each year and gives us so much hope that there will be a cure someday. We feel like the people involved in the MS Challenge Walk are our extended family."

Leslie Baldi & Ken Gagne

IDG Corporate Services Group Senior Accountant Leslie Baldi and Computerworld Senior Associate Online Editor Ken Gagne at the 2011 MS Challenge Walk.

Since 2003 the Baldis have participated in or volunteered at numerous events for the National MS Society. Baldi has provided bike support at the MS Journey Walk for a number of years, and she and her husband volunteer at other one-day walk or bike events. She also completed the 150-mile Cape Cod Getaway bike event in 2007 and 2008 for the MS Society. "We have to thank so many of our friends and co-workers at IDG who have been supporting us for the past six years," she added.

Gagne said that at a job prior to coming to Computerworld, a co-worker asked him to donate to her MS walk. "I wrote a check and didn't think about it again until a month later, when it hit me, 'Wait a minute — my mom has MS. Why aren't I the one walking?'" With less than two months to train and fundraise, he joined his co-worker's team. Since that first walk in 2005 he has raised more than $30,000.

After participating in three Walks, Gagne switched to the bicycle support team, riding alongside the 600 walkers and providing them with food, drink, basic first aid and encouragement. "I usually ride near the back of the pack, since those are the walkers who often need the most support, emotional or otherwise," he said. "It's good for morale to let them know they're not alone, and as bike support I get to see everyone and participate in the entire community."

Gagne has been on the Walk's steering committee since 2008 and also manages the Walk's Facebook page and curates a Walk blog and podcast of Walk stories and advice. "I enjoy knowing that I can contribute my skills to an organization that may not otherwise have the time or resources to investigate such opportunities," he said. "Although podcasting has been around since 2004, it's not a medium any of the National MS Society's 60-plus chapters were currently employing, which is one reason I pursued it: I knew we would be unique."

This year's Walk will be held Sept. 7-9; more information is available here. To support Team Baldi, click here; to support Gagne, click here.

Ken, a Framingham resident, joined the MS Challenge Walk in 2005, more than a decade after his mother was diagnosed. After walking for three years and 150 miles, he switched to the support crew and now rides his bicycle along the trail, providing whatever encouragement (and snacks!) he can to the 600 walkers. He is also on the event's steering committee and is this site's webmaster.

MS Challenge Walk 2012 commercial & PSA

Written by on January 18, 2012 at 11:00 am

They've done it again! You wouldn't think the incomparable experience of walking three days and fifty miles with some of the world's most amazing volunteers could be condensed so succinctly, but Brenda Neary, Marsha Harris, and Mary Esper of Red Dirt Productions have produced the following three-minute video that captures the MS Challenge Walk 2011 and promotes the 2012 event.

This 30-second commercial airs on Comcast Jan 30–March 4: 

The spot will be featured on Comcast's Web site. Comcast subscribers will be able to click through from that commercial to watch the three-minute piece in Video On Demand:

AEN-TV Sa-Su 9am-7pm
BRVO-TV M-Su 8pm-12am
ENT-TV Sa-Su 10am-6pm
FOOD-TV Sa-Su 10am-7pm
M-Su 6pm-12m
HALL-TV Sa 8pm-11p
HGTV-TV M-Su 8pm-12m
LIF-TV M-F 2pm-7pm
STYL-TV M-Su 8pm-12m
TLC-TV Sa-Su 10am-6pm
M-Su 7pm-12m
VH1-TV Sa-Su 10am-6pm
M-Su 7pm-12m

Ken, a Framingham resident, joined the MS Challenge Walk in 2005, more than a decade after his mother was diagnosed. After walking for three years and 150 miles, he switched to the support crew and now rides his bicycle along the trail, providing whatever encouragement (and snacks!) he can to the 600 walkers. He is also on the event's steering committee and is this site's webmaster.

Upstate New York Challenge Walkers

Written by on October 21, 2011 at 3:31 pm

Cape Cod MS Challenge Walk participants from upstate New York were highlighted in the MS Connections article, "50 Miles for MS" that appeared in the Upstate New York Chapter MS Connection newsletter.

Congratulations to teams The Hot Pack, Albany Angels, Wellness Crew, and Seize The Dej, and walkers John Henderson and Beth Farrell! And thank you to everyone who travels to Cape Cod to participate in the MS Challenge Walk. We appreciate everything you do to make our event a success and look forward to seeing you in 2012!

Danielle was a Development Manager for the Greater New England Chapter of the National MS Society, managing MS Challenge Walk 2011 and 2012. Prior to joining the staff of the National MS Society, Danielle served as a crew team captain during the 2009 and 2010 MS Challenge Walks.

MS Challenge Walk on the morning news

Written by on September 7, 2011 at 3:53 pm

Is everyone ready for the MS Challenge Walk 2011? In just over 24 hours, we'll be meeting at the Cape Codder to see old friends and psych up for the next fifty miles!

Just in time for the walk, steering committee chairman Jack Enright appeared this morning on Boston's Fox News to promote the event. The full clip can be seen online:

Jack did a great job plugging our walk, with footage of many familiar friends complementing the news, taken from Andrew Child's photos and various commercials. Be sure to be on the Cape this weekend for your chance to be seen and make a difference!

Ken, a Framingham resident, joined the MS Challenge Walk in 2005, more than a decade after his mother was diagnosed. After walking for three years and 150 miles, he switched to the support crew and now rides his bicycle along the trail, providing whatever encouragement (and snacks!) he can to the 600 walkers. He is also on the event's steering committee and is this site's webmaster.

MS Challenge Walk 2011: The Movie

Written by on March 25, 2011 at 10:10 am

In a world where heroes can make a difference — there exists one weekend when they will do the impossible. The stars will align for hundreds of champions to come together and light a flame against the darkness, daring to defy their very fate. Friendships will be forged and all limits shattered, ensuring nothing will ever be the same.

The tragedy and the triumph has critics raving. "STUNNING," says Leonard Maltin. "A MASTERPIECE," according to Steve Sookikian. "TWO THUMBS UP" from Roger Ebert.

Starring YOU, MS Challenge Walk opens September 9, 2011, for a limited engagement of one weekend only. Watch the sneak preview, then get your tickets today!

Share with your friends by clicking the "Like" button below!

Ken, a Framingham resident, joined the MS Challenge Walk in 2005, more than a decade after his mother was diagnosed. After walking for three years and 150 miles, he switched to the support crew and now rides his bicycle along the trail, providing whatever encouragement (and snacks!) he can to the 600 walkers. He is also on the event's steering committee and is this site's webmaster.