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Keep up the momentum!

Written by on August 3, 2011 at 1:32 pm

My team and I are going to experience our third Challenge Walk coming this September. How do you keep the momentum with training and fundraising? Focus on the prize: a cure for MS. When you feel like you'll never reach your goal or you just can't walk that next mile, picture the faces of MS and you will!

Training in the hot temperatures and the humidity of the summer can be difficult. Cool down before and after training, either in a cool shower, a pool, or drinking cold water can help keep a walker safe! Walk with your friends or take your kids along on the training. My son likes to ride his bike while we are walking. Look for local bike or walking trails to have a walking route without the worry of motorized vehicles. Also, some trails are mile marked for ease in training your scheduled miles.

During my first Challenge Walk, on Day 1 when I was feeling the walk and not finding the inspiration within myself, my husband handed me a photo of our son, which drove me to dig deeper and continue on my journey that day. Find that inspiration you need whether within yourself or through someone else. I wear the Join the Movement bracelet everyday as a visual reminder of the obstacles of MS. Someone once asked me why I don't take it off. My response was simple: 'Because I can't take off my MS.

For the first-time walkers out there, you will see so much inspiration on the walk that you will leave a little bit of a different person. In the meantime, thank you to all the participants for everything you are doing for those of us living with MS everyday. As you embark on your journey to the 2011 MS Challenge Walk, stay safe, hydrated, and inspired — you can do this!

Wendy, the captain of Team WWW (Walk With Wendy), was diagnosed with MS in 2006.  Although she cut down on her work hours during the past year, she still loves her job as a teacher.  Wendy lives in Attleboro, MA, with her supportive husband and 9-year-old son, who provides inspiration for her daily!

Let's make it happen!

Written by on April 20, 2011 at 3:05 pm

I am so excited to work with the many friends I have made over the years as well as begin to build new relationships with those that are embarking on this incredible journey for the first time! As we embark on our tenth year of the MS Challenge Walk Cape Cod, we will come together to celebrate how much of an impact we have had on those we have touched over time.

We have lots of work to do before we get to that finish line in September, and I am looking forward to working with everyone to make this year the most successful event ever.

For the time being, I urge everyone to get involved, stay motivated, and keep your focus! If you're not doing it already, start training for this undertaking — you can start by doing something as simple as walking about 30 minutes a day. Stay on top of your fundraising: engage your family, friends, and co-workers. And most important — get excited!

Please don't hesitate to reach out and contact me at any time regarding your questions or concerns. I'm looking forward to working with you all in the coming months to make this year's Challenge Walk an unparalleled success!

Lori is the Executive Vice President of Resource Development for the Greater New England Chapter of the National MS Society.

One mile at a time

Written by on September 3, 2010 at 10:45 am

As the Challenge Walk quickly approaches, many of us walkers have heard this from family, friends, co-workers, and more: "WOW! Fifty kilometers?! That is a LOT!"

It sure is — but this event is much more than the miles that will be walked!!

Last year, I was a rookie and didn't realize everything I was going to experience at the Challenge Walk. The months of training, fundraising, and build up did not prepare me for the true essence of this event. To see all those walkers and crew focusing on one goal is quite a moving experience! There is a sense of camaraderie and a common bond at the Challenge Walk that you just won't find anywhere else.

Perseverance PathHow do we walk all that way? One step, one mile, and one rest stop at a time.

There will be times that you'll have to push yourself during the two days, but just when you think you can't take another step, someone walking near you, riding on a bike, or at a rest stop will say something that keeps you going to the next mile.

So get those last-minute training sessions in, pack your bag, submit last minute donations, and get ready for an inspirational two-day challenge!

Wendy, the captain of Team WWW (Walk With Wendy), was diagnosed with MS in 2006.  Although she cut down on her work hours during the past year, she still loves her job as a teacher.  Wendy lives in Attleboro, MA, with her supportive husband and 9-year-old son, who provides inspiration for her daily!

Walking 30 at 30

Written by on March 3, 2010 at 11:34 am

The spring 2010 issue of the National MS Society's quarterly magazine, Momentum, is now online and features a great story by Ashlea Deahl, who recently turned 30.

Ashlea's expectations for her third decade changed regularly, the first time being at age 23, when she was diagnosed with multiple sclerosis. "I'll be in a wheelchair by the time I'm 30," she feared. But after coming to terms with her condition, she set out to conquer it. She had a new mission: "If — and only if — I ever lose the ability to walk, at least I'll know that I have done what I could with these legs when I had the chance… That [resolution] led to spinning, kick-boxing and yoga classes, surfing lessons, a rather impulsive purchase of a skateboard, and my first marathon in 2005."

Ashley DeahlIt was only a matter of time before Ashlea set her sights on the MS Challenge Walk. In October 2009, she joined NMSS president Joyce Nelson and several other hundred walkers in marching to our nation's capital.

Ashlea is exemplary of the spirit and determination that every Challenge Walker must possess. Some of us walk for those who can't; others walk while they still can. All know that the challenge of walking fifty miles is trivial next to the challenge of finding a cause and cure for MS. Anything we can do to empower ourselves and disempower MS is a step in the right direction.

Read the article, "How I spent my 30th birthday" (PDF).

Ken, a Worcester resident, joined the MS Challenge Walk in 2005, more than a decade after his mother was diagnosed. After walking for three years and 150 miles, he switched to the support crew and now rides his bicycle along the trail, providing whatever encouragement (and snacks!) he can to the 600 walkers. He is also on the event's steering committee and is this site's webmaster.

A walk of a lifetime

Written by on July 15, 2009 at 11:22 am

I have completed five MS Challenge Walks and have walked all 250 miles. I have walked each year for different reasons and with different perspective.

In 2003, I walked in honor of my great-grandmother, who had MS. She began having symptoms when she was in her early 20s. I remember her in the 1980s, first walking with a walker and braces on both her legs. Then she wasn't able to walk at all, and she was usually in her recliner or her wheelchair. Her MS eventually left her with one functioning arm. She passed away in the late 1980s, in her late 60s, of complications due to MS. She was strong, she endured pain and loss, and she retained her sense of humor. Even though she sat in her chair, I was terrified of her threat of "I'll get the fly swatter!" Every walk, I walk for her.

In 2004, I chose not to walk because I was battling symptoms of my own and fighting to find out what plagued my once strong, athletic, never-tiring body. I knew what I had.

Then 2005 rolled around, and one of my aunts (a non-blood relative) was diagnosed with MS. This prompted my Aunt Patty to join me for the 2005 MS Challenge Walk. To be honest, that year, I walked out of anger. I was angry because I still did not have a definite diagnosis. I was angry that my family and friends did not understand what I was going through. I was angry because, despite having my aunt with me, I felt alone. I looked around at the MS Challenge Walk and was envious of the support that others had from friends and family, not only along the walk route, but in their battle with MS. At the finish line, I stared at the shirts on the table; blue for non-MS and red for MS. What color was I to wear for possible MS?

After my definite diagnosis of MS in early 2006, I walked out of relief. My doctors and my family finally had answers, and I had confirmation. I walked because I could. I walked with hope that no one  else would have to experience the physical and emotional pains that I had.

I walked in 2007 to raise awareness. I wanted people to hear my story, to learn about MS, and to support all of us living with and fighting MS every day. I walked because I longed for the support, the spirit, and the camaraderie of others with different stories bonded by the fight to cure MS.

I signed up for 2008 mostly out of stubbornness ("typical MS personality"?), and with the intent of simply enjoying myself and the company of hundreds of other walkers and volunteers touched by MS. For three days, I felt like I belonged and like I was not alone in my journey. I rather enjoyed myself!

At the finish line in 2008, I eagerly signed up for the 2009 MS Challenge Walk. This past year, however, has been a tough MS year for me. I am 31, I work full time, I live alone and am self supporting. I have suffered many changes in my symptoms and in my body, and I do not have the sam stamina and ability to walk as I have in past years. My friends and family keep asking me, "Why then are you even going to attempt to walk 50 miles"? Because it's about more than just the miles and the walking. Because I can still walk, and I want to keep walking. Because it's about the hearts, and soles, of all of us hoping for lives without MS.

Heather lives in Hampton, NH and completed her first 50 miles in 2003 in honor of her great-grandmother who had MS. Ironically, she began having symptoms in 2004, and was finally diagnosed with MS in 2006. This will be her 6th walk, and her first as team captain of "All Smiles for 50 Miles". Heather recruited 7 friends to walk, and her mom to volunteer on the Crew. Heather is a pediatric physical therapist in NH.

The spirit of the walk

Written by on June 29, 2009 at 12:01 pm

In 2003, I saw a flyer for the MS Challenge Walk in a sandwich shop in Wakefield, Mass.  I flipped through it while I eagerly waited for my dinner. I thought, "50 miles — I can do that." My only connection to MS was that I wanted to walk in honor of my great-grandmother, who had lived with MS for more than 40 years. I signed up.

A few months later, I drove down to Hyannis the night before the walk, completely naive to what "challenge" meant. I had no expectations other than taking in the moment and people and walking the 50 miles.

Over those first 50 miles, I talked to anyone and everyone I could. I asked people why they were walking, what their relationship was to MS, why they volunteer, and how they fight their MS battle. As a physical therapist, I thought that what I learned from others, I would be able to use and share with my patients.

I quickly learned that participating in the MS Challenge Walk was not about the walking part at all. It wasn't about how many miles you did or didn't walk. It wasn't about how long it took you, if you survived without blisters or not, or how much money you fundraised compared to your bunkmates.  The walk had a feeling.

I had never partaken in an event that was so emotionally charged and moving. I was astounded by the energy, the smiles, the hugs, the cheers, the courage and strength people exuded, the encouragement from volunteers to carry on, and the spirit found in the hundreds of people I spent the weekend with — all for the common cause of fighting MS and hoping for a cure.

That is the reason I keep on walking.

This will be my sixth year walking in the MS Challenge Walk. Things have changed, though. In 2004, I began having symptoms myself, and I was diagnosed with MS in 2006. It is ironic that I chose to participate on a whim in 2003, and now I struggle with the physical symptoms and the decline that my body has endured due to MS. In the, past I have pushed and forced myself stubbornly to walk the whole 50 miles, but the thing that has carried me through it all has been the spirit of other walkers and volunteers.

It is extremely difficult to put something so emotional, something so powerful into words. When I flip back through pictures and watch video that I took, and when I share it with friends and family, I tear up. They are tears of happiness, fullness and peacefulness, for it brings forward the intense emotions and spirit that the MS Challenge Walk creates.

It's not about the miles; it's about the people. It's about you.

Heather lives in Hampton, NH and completed her first 50 miles in 2003 in honor of her great-grandmother who had MS. Ironically, she began having symptoms in 2004, and was finally diagnosed with MS in 2006. This will be her 6th walk, and her first as team captain of "All Smiles for 50 Miles". Heather recruited 7 friends to walk, and her mom to volunteer on the Crew. Heather is a pediatric physical therapist in NH.