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Tell your story!

Written by on May 27, 2009 at 12:21 pm

In just a few months, Cape Cod will see 600 people walk for multiple sclerosis. What they won't see is what each walker carries with them: their reason for walking. Everyone who accepts the challenge of walking 50 miles has a story. Some people walk for their loved ones; some walk for themselves; others walk simply because someone has to. Every walker's story is one of hope, dedication, and courage — and the NMSS wants to help you tell your story.

The surest way we can defeat multiple sclerosis is by making it a personal cause; when others see the impact it has on them and their loved ones, they can't help but want to contribute to a world free from MS. That's why the NMSS is asking you to tell your story by filling out its online form. The NMSS's communications department and their public relations firm will collaborate to get your story in front of potential donors, spreading the word about our movement.

The power of effective marketing cannot be understated. I filled out the form a few years ago and got a call from my hometown's newspaper. They sent a reporter and photographer to my mom's house to interview us; here's the resulting story (opens as a PDF). It ran on the paper's front page just a week before the MS Challenge Walk and resulted in a few pledges and phone calls — several hundred dollars over the years that I otherwise would not have raised.

Not feeling particularly eloquent? Don't worry — that's the publicist's job! Just give us the details, and our public relations machine will get to work. We've already had other successes in getting your stories told, and we'll repost them here throughout the summer.

I encourage you to take the time to tell your story. It's a great way to show how proud you are of the people in your life!

Ken, a Worcester resident, joined the MS Challenge Walk in 2005, more than a decade after his mother was diagnosed. After walking for three years and 150 miles, he switched to the support crew and now rides his bicycle along the trail, providing whatever encouragement (and snacks!) he can to the 600 walkers. He is also on the event's steering committee and is this site's webmaster.

Don't be afraid to ask for help!

Written by on May 8, 2009 at 12:45 pm

One of the most difficult and most rewarding aspects of our family's first Challenge Walk was the process of actually asking for money. It seems strange that we should be nervous about asking others to give to a charity, but for us, it was difficult.  We felt that our struggles were private and personal, we are after all New Englanders (renowned for our extroverted nature).

When we began the fundraising process, we decided to keep it simple: we would send letters to our family and friends asking them to help fight a disease which had struck our brother (actually my brother-in-law, but after all these years of dating and being married to his sister, he is my brother Gordy). As we went through the list of those we might send our letters to, we began making excuses for why we  shouldn't ask certain people. "They don't have a lot of money," " I don't know them well enough," or "He's just cheap" were ways of disqualifying them from our list. There were inevitably those that we doubted but decided to send anyway.

When our responses started coming back, we had what I consider one of the most powerful moments in our Challenge Walk experience. Many of them said things like "Thank you for considering us part of your friends and family," "We too have a family member with MS," and "What else can we do to help?" We not only brought in more than we thought we would; we expanded our team. Some of our friends and extended family decided to walk and send letters to their friends. Soon, we didn't just have a few siblings and spouses walking — we had a team that spanned the length and breadth of the United States. Gordon's Team was born.

We learned so much that first year, not only about how far we can walk on blisters, or how nice it is to put the cell phone down for three days, or that after twenty miles, a foot soak is pure bliss. We learned that so many people want to help, want to feel connected to someone on a personal level. When the response from "He's just cheap" came back to, our surprise it not only contained a check for $10 (every bit counts!), but a note that read "Thank you for allowing me to contribute to your lives."

Now, every April vacation, my wife Kim creates the Gordon's Team Newsletter and donation request filled with info and photos about Gordon himself and the activities of our team. We make sure that we send it to everyone we know whether they are friends, family, colleagues or acquaintances. We no longer discuss why someone won't help; we just assume the best.

Our little story comes with a word of advice: don't be surprised if some people don't respond. That's OK too, two of my three siblings have never donated to our team. I don't question why, as everyone has their own story, but I send them a letter every year just in case.

This is truly a Challenge Walk. We are challenged to believe in ourselves and more importantly to have faith in others. Keep the faith, and allow people to contribute to your life: it not only helps the cause, but you will feel better about the world and yourself.

Tim is a member of Gordon's Team, named for his brother-in-law, Gordon Mellis. Tim signed up for the Challenge Blog in the hope that his story is both personal and at the same time common enough to be useful to others.