About ten years ago, I heard four words that changed my life: "You have multiple sclerosis." I had no idea what MS was, nor did I know anyone with MS. There was tingling in my arms, I felt fatigued a lot, and my right leg would drag to the point that I had trouble crossing a room. My symptoms would come and go, and I never knew when I would have another relapse or how long it would last. I was married with a 2-year-old and afraid of how I would be able to take care of my son and myself. Working was out of the question — how could I work while having MS? I felt alone and scared. I soon slipped into a major depression.
Eventually, I joined support groups and met other people with MS. They helped me understand that I was not alone. My spirits started to lift. As the years went by, I grew more confident.
A few years ago, someone showed me a mountain. "Do you want to go climbing?" he asked. I said, "Are you nuts? I have MS! There's no way I could climb a mountain. What if I start having problems? What if my leg dies out on me? What if…." Since I got diagnosed, these questions often stopped me, but my friend convinced me to try, promising I had to go only as far as I felt comfortable. I relented and, once I made the decision to climb, decided to go as far as I could. I actually made it to the top of the mountain! It was a small mountain, but a mountain nonetheless. The view from the top was amazing — but even more amazing, my attitude started changing. If I can climb a mountain, I wonder what else I can do? I realized that the "what ifs" were causing me to miss more of my life than I realized.
The feeling of conquering something I never thought I could do was almost addictive. I wanted to climb again. The second time was not as easy, but I was determined. Slowly and steadily, I made it to the peak. But the problem with going up a mountain is you have to go back down! The concept seems obvious, but it really hits hard when you can barely get your leg over a single rock. There is no other way off the mountain: you just keep plugging along until you get to the bottom. No way did I want to do that again!
But, being the stubborn person I am, I climbed again and again. Some times were easier than others, and there were more times I swore I would never go again. Each time, I was terrified that my MS would take my legs — but I always went anyway. Now, each year I challenge myself to bigger mountains. What drives me to climb is the same question that once stopped me: "What if?" What if my legs get so bad this will be the last mountain I can climb? What if I don't climb this year … would I regret it when I can't next year?
Over the past three years, I have climbed some sizable mountains in New England, many of them 4,000+ footers. Each had its own challenge, but they also provided amazing views and feelings of accomplishment. Last year I climbed Mt. Adams, the seconds highest mountain in New England. I still can't believe I made it to the top above the clouds. It was amazing!!
This year, I am training even harder, because on August 9th, I will attempt Mt. Washington, the highest mountain in New England. Imagine! Me, who has MS and was scared to do anything, climbing the highest mountain in New England! Four years ago, climbing Mt. Washington was a crazy idea — but here I am, crazy as ever and ready to climb.
All of us with MS have our own mountains to climb: walking around the block or to the mailbox; standing for a moment to take a photo with your child who is getting married; going out with friends, playing with your kids (or grandkids), volunteering at an event, or inspiring people with a speech. We have our good days and our bad days. We do what we can, when we can; if we can't, that's okay too. Let's use our bad days to rest and plan for our next good days.
We have MS, but MS doesn't always have us! Climb those mountains!
(Follow Marisa on Facebook as she tackles Mt. Washington this Friday!)